Patient and Public Involvement Opportunities

  • At the London School of Hygiene & Tropical Medicine we are very pleased to be training up a new generation of health data scientists. Being able to communicate well with patients and the public is an increasingly important skill for researchers working in this area. We are looking for a few volunteers to talk to our students about their research projects, to help students practice their communication skills. No research experience is necessary.  

    More information about the sort of graduate we are trying to train up can be found here: 

    Participating in this session would involve joining a Zoom meeting at 11am on Friday 28th January. You would talk to two small groups of 4-5 students, for about 15-20 minutes per group. We are looking for 4-5 patients or members of the public to participate. 

    Please contact Dr Sam Clifford on Sam.Clifford@lshtm.ac.uk if you are interested.  

  • The Digital Interventions for South Asians with Cardiometabolic Disease (DISC) study is looking at inequalities in the use of digital healthcare, such as websites and phone apps, for cardiovascular disease and/or diabetes. This will help us understand how patient care in this area can be improved.

    To make sure that the research has the largest possible impact, it is important that the findings are accessible to the diverse South Asian communities in the UK. As such, the study want to involve people from a South Asian background, who have personal experience of cardiovascular disease and/or diabetes.

    The DISC study has launched an online survey to understand how and why people from South Asian background use health technology for cardiovascular disease and diabetes. All participants will have a chance of winning a £50 retail voucher as a token of the study’s thanks. 

    Click here to complete the survey

    If you have any questions, about the survey, please email the DISC Study team at: disc-study@ucl.ac.uk

  • The Secure Anonymised Information Linkage (SAIL) databank focus on anonymising and linking routinely collected data to help develop health and care research. To help them build and sustain public trust their Consumer Panel play a key role. As well as providing ideas on engaging with the public they advise on bids through approval processes, review information for a lay audience, offer advice on how to recruit reps to study steering groups and much more.

    The Consumer Panel have an ongoing recruitment process and are looking to ensure they have a range of people with different perspectives involved. If you’re based in Wales and are interested in getting involved, you can get in touch with the Swansea based team at dsbconsumerpanel@swansea.ac.uk

    Find out more and get involved

Diversity and Inclusion

At HDR UK, we embrace diversity and all the ways we are different – visible and non-visible alike and believe diversity and inclusion fortifies each part of our Institute. We are committed to creating and running inclusive opportunities for patients and members of the public to get involved and truly engage with our work. We are actively building relationships with a variety of networks and populations to enable us to shape our work through a diverse and representative range of views and ideas and ensure the opportunities are run in a way that meets the needs of people we are looking to involve.

Health data affects everyone and we want to encourage everyone who has an interest in health data (including whether or not you are pro-access to health data) to get involved. If you have any questions or any ideas or suggestions on how we can improve the inclusivity of our patient and public involvement and engagement activities please get in touch at feedback@hdruk.ac.uk or call 07597 552671.

Dr Amitava Banerjee, Associate Professor in Clinical Data Science:

“Research and healthcare data starts and ends with patients and the public. In fact, to have the highest impact, patients and public have a vital role to play at every stage.”

Have an opportunity to promote?

If you’re working on a project that would benefit from patient and public involvement and engagement that you’d like us to help promote, get in touch at involvement@hdruk.ac.uk.

Upcoming Events

Find out about our upcoming events and how you can get involved!