Our approach

Patient and Public Involvement and Engagement (PPIE) is vital in the development of different areas of our work, including those where there is a level of uncertainty. Involving patients and members of the public will help us become a trusted voice on these complex issues and will be key in helping build a system that is worthy of their trust and confidence in using health data for research. It will also help develop the public’s understanding and has the potential to create ambassadors.

Read our Communications Engagement and Involvement Strategy

Our achievements so far

To really benefit from working with patients, carers and the public, we encourage all teams and projects to be set up in a way that allows for meaningful involvement. To support our teams and partners achieve this, we worked with patients, members of the public, staff members and others experts in the field to develop a set of Guiding Principles.

Patients and members of the public have been involved in a range of activities across the HDR UK Institute and we’ve seen the impact and value this brings. This includes work by our Public Advisory Board, lay members in our Governance structure, our COVID-19 Patient and Public Involvement and Engagement Group and groups and panels set up to support the Health Data Research Hubs and research priorities.

We’re creating some case studies to showcase the impact patients and members of the public have made but in the meantime, find out how our Public Advisory Board have been involved.

Get involved

We’ve been working to grow our patient and public involvement and engagement activities, and are keen to work with a wide range of people in as many different projects and areas of our work as possible. You can get involved in as much or as little as you like and through our growing range of opportunities we’ll help find something that suits your needs.

Join our HDR UK Voices Network and use your voice to make a difference