The datasets curated by INSIGHT will be available through the HDR Innovation Gateway. Applications to access the data will be reviewed by INSIGHT’s Chief Data Officer before being passed to our Data Trust Advisory Board (Data TAB). The Data TAB is formed of members of the public, patients and other stakeholders joining in a private capacity. They bring their own experience to ensure broad representation of opinions and perspectives. The Data TAB will scrutinise individual applications using a set of principles based on the ‘Five Safes’ and other public benefit criteria. Applications will be accepted or rejected in a transparent manner and successful applicants will be subject to strict licensing agreements that prioritise data security and patient benefit.
We are a collaboration between six partners: University Hospitals Birmingham NHS Foundation Trust (lead institution), Moorfields Eye Hospital NHS Foundation Trust, The University of Birmingham, Roche, Google and Action Against AMD.