Call for UK data custodians to map health data for public benefit is open
3 October 2022
Health Data Research UK (HDR UK) and the UK Health Data Research Alliance in collaboration with the European Health Data & Evidence Network (EHDEN) have opened their call for UK data custodians to apply for funding and support to map European health data to the Observational Medical Outcomes Partnership (OMOP) common data model (CDM).
EHDEN’s mission, to reduce the time needed to provide answers in real world health research, is being achieved through the creation of a large-scale, federated network of data partners across Europe who collaborate on research methodologies and education.
The ambitions of the EHDEN project are high – standardising more than 650 million patient records across Europe from different geographic areas and different data sources.
The mission and aspiration closely align with those of HDR UK and the Alliance who are delighted to be supporting this 7th Data Partner Call.
The data partners who make up the EHDEN consortium include professionals from academia, healthcare, pharmaceuticals, life sciences companies, regulatory authorities, and patients. Many of the existing 17 EHDEN UK Data Partners are members of the UK Health Data Research Alliance, including Clinical Practice Research Datalink (CPRD), Royal College of General Practitioners Research and Surveillance Centre, and SAIL Databank.
The current call has a €1.34 million combined budget. Mapping of data from partners in the consortium to the OMOP CDM will support the enhancement and acceleration of research and healthcare decision-making for public benefit.
Submissions will be accepted via the EHDEN website from 12:00 CET Wednesday 12th October to 17:00 CET Friday 11th November 2022.
Read more about EHDEN’s Partner Call announcement and find out about the application requirements.
Clinical Lead for DATA-CAN Chief Clinical Data Officer for HDRUK, Geoff Hall says:
“Leeds Teaching Hospitals were funded by EHDEN in October 2020 to support the implementation of the OMOP common data model within the Leeds Data Platform.
“We have been working with a UK-based SME to deliver this work and have also been assessing the OMOP conversation toolset developed within the HDRUK-funded CO-CONNECT programme.
“I am delighted that HDRUK have been able to offer additional funding to the final call from the EHDEN team to support data custodians across the UK to work towards adoption of the OMOP common data model. I hope that a number of UK teams take this opportunity to work with EHDEN and their approved SMEs.”
Nigel Hughes, Scientific Director, Epidemiology, Janssen Global R&D, and EHDEN Project Lead says:
“EHDEN has had a remarkable response to our Data Partner Calls to date, with some 405 applications and 166 selected in 26 countries. We are hoping for a similarly strong response for our 7th and final call, but also are delighted to be partnering with Health Data Research UK to support UK applicants. Together we have a shared vision of safely using real world, clinical data, to support evidence generation for research and R&D at scale, and our complementary initiatives are actively transforming the research agenda to ensure it is evidence today, and not in several tomorrows.”
Paola Quattroni, Head of Alliance Strategy and Engagement (Interim), HDR UK says:
“Driving best practice and adoption of common standards for health data is a key focus for Health Data Research UK and the UK Health Data Research Alliance. We are delighted to be partnering with EHDEN for this call, and hope to see many UK data custodians join this initiative to enable international health data research and collaboration.”
The EHDEN project is a public-private partnership set up under the framework of the IMI2 programme. The EHDEN consortium consists of twenty-three partners, and is led by the Erasmus Medical Centre, The Netherlands, and Janssen Pharmaceutica N.V., Belgium.
About HDR UK
Health Data Research UK (HDR UK) is the national institute for health data science. HDR UK’s mission is to unite the UK’s health data to enable discoveries that improve people’s lives. HDR UK is funded by UK Research and Innovation, the Department of Health and Social Care in England and equivalents in Northern Ireland, Wales and Scotland, and leading medical research charities.
email@example.com | www.hdruk.ac.uk | @HDRUK
About the Alliance
The UK Health Data Research Alliance is a growing partnership of healthcare and research organisations united to establish best practice, standards and tools to enable ethical and trustworthy use of health data at scale for research and innovation. It is convened by HDR UK.
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