The Shared Commitment aims to bring about changes which will drive up standards in health and social care research.
Dr Matt Westmore, HRA Chief Executive, said: “It’s great to have HDR UK joining our Shared Commitment to Public Involvement.
“This shared statement, developed with patients, research participants and leaders in health and social care research, will ensure public involvement is embedded across the health and social care research system.
“The entire research system is sending the same strong message. That public involvement is always important, always expected and always possible. The evidence is that better research results from involvement, and better research delivers benefits for patients.”
The Shared Commitment builds on work led by the HRA in response to the reduction in public involvement seen in studies submitted for approval at the start of the COVID-19 pandemic.
Public involvement refers to the ways in which the research community works together with people including patients, carers, advocates, service users, and members of the community.
Cassie Smith, Head of Legal, Trust and Ethics at HDR UK, said: “As the UK’s national institute for health data research, we are in a privileged position to enable research using health data to improve and save people’s lives. We therefore have a duty to ensure patients, carers, communities and the public are actively involved in decisions about how their data is used for research.
Signing up to the ‘Shared Commitment to improve public involvement in health research’ is an important step in building and scaling up active and meaningful patient and public involvement that ensures the diverse public directly influence and shape our work to deliver public benefit to all.
This is a fantastic example of collective action in practice across health and social care research and we are looking forward to collaborating with the community to improve practice, deliver change and ensure the needs and experiences of patients and the public are the center of our work.”
In December the HRA and HDR UK will be coming together to for the HDR UK Annual Scientific Conference: Data for Global Health and Society, of which HRA are an official partner.
The event will look at the use of data to advance medical knowledge and deliver improvements to people’s lives, and hear from leading national and international figures from the health data sector, including Tim Ferris, National Director of Transformation at NHS England.
Dr Matt Westmore, HRA Chief Executive, said: “We’re delighted to be working in partnership with HDR UK to deliver the Data for Global Health and Society conference. Health data is crucial for improving treatments and saving lives and it’s essential that it’s inclusive and accessible for all. The conference is a great opportunity to come together and share learnings from across the sector.”
The conference is a hybrid event and will be hosted in Birmingham on Wednesday 14 December.
Organisations who have signed the shared commitment include:
Lynn Laidlaw: “I want to have an honest conversation about the strengths, and limitations, of data. And you can too.”
28 October 2022
We hear from Lynn Laidlaw, one of HDR UK’s public and patient advisors who will be speaking at HDR UK’s Scientific Conference in December, about what public involvement means to her and how we...
Public and Patient Involvement and Engagement (PPIE) Impact case study – BREATHE
7 October 2022
From its inception and grant award in 2019, BREATHE, the Health Data Research Hub for Respiratory Health, has invested in Patient and Public Involvement and Engagement (PPIE). The contribution...
The role of PPIE in enabling rapid and trustworthy access to regional health data to support COVID-19 vaccine research
10 February 2022
We invited members of the public to participate in a workshop to understand public perspectives in making regional, linked health data available for research use, to support vaccine safety...
Involving and engaging patients and the public
We ensure our work is worthy of public trust and confidence by meeting people's needs. Visit our pages to see how you can get involved as a public member. If you're a researcher, take a look at our training and support.