We have provided input to the Goldacre Review request for information on past, present and planned work around Trusted Research Environments (TREs) and data management, specifically on:
- TREs (this may include commodity technology such as a server in a rack, or some cloud capacity, and the permissions structure around it; or a more complex and bespoke environment with specific analytic code and services operating within it).
- Methodological work, code or tools for data management (whether EHR data, bespoke collections of health data, or other related data).
- Methodological work, code or tools for federated analysis.
The Goldacre Review provides a timely stock-take of progress to date and consideration of the best options for future activity related to TREs and data management across England. It is important to ensure alignment between this perspective and the development of a UK-wide (and beyond) federated network of TREs. This will be further addressed in the upcoming papers from the health data science community which are currently in development or under consultation, including the data standards green paper and Trusted Research Environment white paper, which will be published in May 2021.
Public and patient involvement and engagement, open science and open code are at the heart of our developments, and with over 150 resources available on Github, we are committed to accelerating reproducible science through open standards, data and source code.
Goldacre Review of Use of Health and Care Data for Research and Analysis
25 March 2021
Health Data Research UK (HDR UK) welcomes the opportunity to contribute to the Goldacre review of health data for research and analysis.
Submission from HDR UK Public Advisory Board to the Goldacre Review
12 March 2021
On 9 February, the government announced a rapid review to focus on the more efficient and safe use of health data for research and analysis for the benefit of patients and the healthcare sector...
Bennett Professor of Evidence-Based Medicine and Director at Bennett Institute for Applied Data Science
Ben Goldacre is a doctor, academic, writer, and broadcaster. He trained in medicine at Oxford and UCL, in psychiatry at the Maudsley, and in epidemiology at LSHTM. His academic and policy work is...