Population Research UK – how public contributors helped to shape research at its earliest stages
HDR UK sought to embed public and patient involvement in the entire journey of the design and dialogue phase of Population Research UK - through its design, to delivery, to impact and...
CO-CONNECT: A layperson’s perspective on using health data, building trust and the benefits of sharing
Karen Mooney, one of the Public and Patient Involvement team members for the CO-CONNECT project, guest-blogs on how getting closer to data has shifted her perspective.
How public contributors are influencing access to health data through the NHS Digital Trusted Research Environment Service for England
Involvement of patients and the public in data access processes, including access requests through Trusted Research Environments (TREs), is vital to ensuring the trust and support of those whose...
PIONEER’s public conscience – reflections on the first year of the Data Trust Committee
PIONEER, the Health Data Research Hub for Acute Care, reflects on the impact that their Data Trust Committee has had on access to health data for research.
How the HDR UK Public Advisory Board are driving involvement of patients and the public in data access processes
There’s nothing quite like throwing a small pebble into a still pond and watching the ripples spread out across the surface. Being a patient and public representative often feels like being a...
How North-West Londoners have helped shape how their health data should be accessed for research
Discover-NOW is the Health Data Research Hub for Real World Evidence and aims to revolutionise the way health data is used responsibly for research into treating and preventing disease. They...
DATA-CAN, the Health Data Research Hub for Cancer, speak to BMJ Opinion on how they work with patients and the public
Mark Lawler, Chris Carrigan, and colleagues describe how DATA-CAN’s co-created partnership has brought together patient representatives, healthcare professionals, and academic and industry...
Long COVID in Schools
How understanding the views of young people, families and doctors shaped research funded by Data and Connectivity National Core Study programme.
Data and Connectivity Rapid Funding Call: A guide to embedding patient and public involvement
We are pleased to publish a new document which provides guidelines to embed patient and public involvement (PPI) in a research funding call. The document provides advice and steps to ensuring that...
Why Public and Patient Engagement and Involvement is so important to health data research – Andrew Morris, Director HDR UK
In celebration of National Coproduction Week, we asked Andrew Morris for his thoughts on why Public and Patient Engagement and Involvement is so important to health data research.
Why PPIE is so important to health data research – SAIL Databank
In celebration of National Coproduction Week, we asked SAIL Databank for their thoughts on why Public and Patient Engagement and Involvement is vital for their research.
Why Public and Patient Engagement and Involvement is so important to health data research – Dr Sarah Bunney, Imperial College London
In celebration of National Coproduction Week, we asked Dr Sarah Bunney for her thoughts on why Public and Patient Engagement and Involvement is so important to health data research.
How public insights led by HDR UK informed vaccine research
In December 2020, the UK was at a crucial point in its response to the pandemic, with COVID-19 vaccine(s) entering the final stages of development and approval being rolled out across the four...
Why Public and Patient Engagement and Involvement is so important to health data research – Jillian, Rosanna and Chris, HDR UK lay members
Patient and public involvement and engagement (PPIE) is vital in the development of different areas of our work, including those where there is a level of uncertainty. Involving patients and...
Impact of patient and public involvement in the Data and Connectivity National Core Study
As the COVID-19 pandemic swept across the UK, the need to build a national health data capability to support priority COVID-19 research was obvious. Set up by the Government’s Chief Scientific...
Reflections on the COVID-19 National Core Study Data and Connectivity Delivery Group
What began as something so undesirable as a worldwide pandemic has become a catalyst for a coordinated, UK-wide approach to COVID-19 research, the National Core Studies Programme. It had become...
Get in touch
Patient and public Involvement is constantly shaping and influencing our work at HDR UK. If you have been involved in a piece of work with HDR UK and would like to talk to us about writing a case study or blog on your experiences, please email Alice (Public Engagement and Involvement Officer) at Alice.Dowden@hdruk.ac.uk.