The Alliance is managed by Health Data Research UK (HDR UK) and funded as part of HDR UK’s 2023-2028 core work to accelerate the trustworthy use of health data for research.

It was previously supported by UK Research and Innovation’s (UKRI) Industrial Strategy Challenge Fund (through the ‘Data to early diagnosis and precision medicine challenge’) as part of the Digital Innovation Hub (DIH) Programme.

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The purpose of the Alliance

The Alliance aims to accelerate progress in health and care by encouraging widespread and responsible access to structured and unstructured clinical, administrative, imaging, genomic and other molecular data.

The UK has some of the richest health datasets world-wide. Some of these are well organised, but only a fraction of all NHS and research data is accessible for research and innovation. This makes it difficult for researchers and innovators realise the full potential and value from the data, slowing down the development of new treatments, innovation and progress towards a more efficient health and social care service.

By combining expertise and a shared commitment to health research collaboratively, we are helping researchers and innovators to answer some of the most difficult questions and address the most important health challenges faced in the UK.

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How the Alliance works

Through the development and sharing of best practice, and by earning trust in health data use, the Alliance aims to maximise research potential and ensure it benefits as many people across the UK as possible – we achieve this by:

  • Bringing together the research, clinical, and disease advocacy communities, patients and the public, and the private sector to support and promote the responsible sharing of health data for vital research and innovation.
  • Collaborating to create a versatile platform that is open and accessible, and provides common standards and tools for stakeholders in the health data science community; and,
  • Publishing a series of Green and White papers on key work areas for consultation, helping to shape developments and to create a responsible and ethical infrastructure for UK health research and innovation.

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Meet the Alliance team

David Seymour Director of Infrastructure and Services
Paola Quattroni Head of Alliance Strategy and Engagement, HDR UK
Claire Argent Alliance Engagement Officer
Stephen Burrows Alliance Engagement Officer
Nada Karrar Project Manager - Data Access Registers

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