Regional Linked Health Data for Research Programme
No existing data feeds provide detailed and near-real time information on hospital admissions across the UK. Currently available national data feeds are dated, do not include people still in hospital, and lack detailed coding which can help differentiate between different conditions or diagnoses. This is a gap in the UK health data research ecosystem that needs addressed.
Enabling detailed, near-real time hospital admissions data feed of regional level data would provide vital data for research and NHS audit programmes that develop and evaluate safety and effectiveness, and would also support high priority research
A cross-regional collaborative group covering nine regions across England and Scotland have been convened by the Data and Connectivity National Core Study (NCS) and led by Luke Readman, Director of Digital Transformation, NHS England (London Region).
The group has conducted three ‘driver projects’ which have explored data capability, data access and feasibility of enabling near real time hospital admissions linked data feeds across the different regions.
We also invited members of the public to participate in a workshop to understand public perspectives in making regional, linked health data available for research use, to support vaccine safety research and to consider examples and situations that go beyond vaccine safety (read full report).
How have we involved the public?
We invited 18 members of the public from across the UK, to participate in a workshop to understand public perspectives in making regional, linked health data available for research use, to support high priority research, such as COVID-19 vaccine safety. You can read the report of this workshop here.