Health Data Research UK does not control any health data. We work with organisations that hold and manage datasets and we support connections between these datasets to support access for research and innovation.
Our approach is guided by existing and developing recommendations and best practice for data research. This includes the Medical Research Council’s Good Research Practice: Principles and Guidelines and the Academy of Medical Sciences’ Patient Data and Data Driven Technologies in Healthcare.
Good data practice underpins the high-quality science, research and innovation undertaken across Health Data Research UK and supports the evidence base needed to drive improvements in health. This will provide a foundation for capability building and will help increase public confidence and trust in the research process and outputs.
The responsibility for promoting and delivering good data practice is shared by the whole research community and Health Data Research UK strives for the highest achievable standards in the planning, conduct and reporting of research. Our partner research institutions foster a culture that supports and embeds good data practice and ensures that appropriate resources and skills are in place to deliver the research and maintain high standards of integrity.
This will ensure the UK maximises the benefits and value of data to patients, the population, the NHS and society as a whole.