Visit the BREATHE website

Whilst BREATHE is not currently active, our Hub’s philosophy of collaboration lives on, with partners continuing to work together and build on their achievements and the resources created.

1 in 5 people across the UK has a long-term respiratory condition.

We are fortunate in the UK to have some of the best health data sets in the world, which can offer opportunities to transform health and care – but these are often difficult to find, access and use.

At BREATHE, we want to improve respiratory health by changing the way the NHS, researchers, industry and charities use data. We did this by:

  • Bringing together useful respiratory datasets, so they can be easily discovered by researchers and innovators.
  • Curating and improving these datasets, providing access to the highest quality data.
  • Providing services and expertise to drive the use of health data in ground-breaking research and innovation.
  • Working in partnership with patients and the public to promote the responsible use of health data for patient benefit, protecting privacy at all stages.

 

About BREATHE

  • BREATHE was a unique collaboration with patients and the public, UK Universities, third sector, Government organisations and industry from across the UK and globally.

    The Hub was led by The University of Edinburgh, Imperial College London, the University of Leicester, Nottingham University Hospitals NHS Trust, Queen Mary University of London and Swansea University. SAIL Databank was used as the primary Trusted Research Environment for BREATHE. BREATHE worked at the interface of respiratory health and data science, and activities fell under three priority themes:

    • Drug Discovery and Pharmacogenomics: enabling relevant datasets to be Findable, Accessible, Interoperable and Reusable (FAIR), and providing expert support to catalyse their use in respiratory research
    • Real World Evidence: facilitating the better use of real-world evidence for respiratory care
    • Digitally Enabled Trials: promoting the design and delivery of trials which encourage the use of digital technologies to enhance efficiency.

  • At BREATHE, we remain passionate about health data and enabling others to utilise their full potential.

    We worked with a range of organisations and individuals, including academic researchers, charities and third sector organisations, SMEs and larger industry partners.

    Our network grew with the addition of Supporting Partners, who aligned with our vision of enabling better respiratory health through better connected data. This included the Cystic Fibrosis Trust, Diveplane, IQVIA, Oxford-Royal College of General Practitioners Research and Surveillance Centre, and PrecisionLife.

  • We believe health data has a crucial role to play in the improvement of respiratory health in the UK. As such, we maintained patient and public input at all stages and levels of BREATHE activity.

    From the seed of an idea, to establishing and growing the Hub, patients and members of the public have been involved in BREATHE every step of the way. These partnerships were fundamental to improving our work and strengthening our impact.

    Both our External Advisory Board and Executive Team included lay representation, ensuring that the strategic direction of the Hub continued to be shaped and guided by patients and the public.

    All applications to access BREATHE data via our Trusted Research Environment (TREs), SAIL Databank, were reviewed by members of the public. They helped us to focus on research that will have the biggest impact on respiratory health in the UK.

Synthetic Data Guidance

Further information:

Visit the BREATHE website

Discover BREATHE on the Gateway

Follow BREATHE on Twitter