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In Northern Ireland, I had often felt like a lone voice calling for wider access to patient data by accredited researchers. Now, I'm a member of a bigger UK organisation which would have a major...
By sharing our unique experiences, we can help researchers and patients learn from each other. Open the door and see how it is. Give one step and you can always go back out.
After personal experience with a rare condition, I know how it feels to be bombarded with jargon and misleading articles. Getting involved allows me to have a say in all parts of the research process.
The Public Engagement in Data Research Initiative (PEDRI) is seeking consultation on the first draft of new standards to guide best practice for involvement and engagement activities in the use of...
HDR UK welcomes the Chancellor of the Exchequer’s pledge of £650 million for the UK’s life sciences including £121 million to improve clinical trials to bring new medicines to patients faster.
Researchers at the BHF Data Science Centre are seeking public views to help design a new app that could better study how activity levels vary with changing heart health.
Health insights gained from smart tech and wearable devices could be bolstered dramatically by safe and secure linkage to electronic health records, according to researchers at the BHF Data...
Earlier in November, Health Data Research UK was awarded first place in the Best diversity and inclusion category 2023 by CorpComms Magazine for their Black Internship Programme campaign
