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Karen Mooney, one of the Public and Patient Involvement team members for the CO-CONNECT project, guest-blogs on how getting closer to data has shifted her perspective.
Involvement of patients and the public in data access processes, including access requests through Trusted Research Environments (TREs), is vital to ensuring the trust and support of those whose...
There’s nothing quite like throwing a small pebble into a still pond and watching the ripples spread out across the surface. Being a patient and public representative often feels like being a...
Are you interested in COVID-19 vaccine safety research? Then join us at our upcoming Data and Connectivity Open Door on COVID-19 vaccine safety research!
DATA-CAN, the UKs Health Data Research Hub for Cancer, discusses how they work with patients and the public to deliver better outcomes for those living with cancer.
Overview The REACT (REal-time Assessment of Community Transmission) study has been a highly influential source of reliable, near real-time data for healthcare leaders and government. This paper...
We are pleased to publish a new document which provides guidelines to embed patient and public involvement (PPI) in a research funding call. The document provides advice and steps to ensuring that...
In celebration of National Coproduction Week, we asked Andrew Morris for his thoughts on why Public and Patient Engagement and Involvement is so important to health data research.
In celebration of National Coproduction Week, we asked Discover-NOW for their thoughts on why Public and Patient Engagement and Involvement is crucial to the success of their Hub.
